“I was asking, ‘Why me?’, ’cause I keep an active lifestyle, I eat quite healthily, so I never expected to have a medical condition. And in addition, it is so rare, it’s considered a rare condition – so, why me?”

Toh Kok Peng (@tohkokpeng), 38, father of 2 young boys and part of the Naval Diving Unit, is diagnosed with ALS (amyotrophic lateral sclerosis), a progressive neurodegenerative disease. The harsh truth about this motor neuron disease is that it has no cure and an average life expectancy of 2 to 5 years.

Kok Peng however, remains positive, and maintains a strong sense of optimism to live his life and create more memories with his family.

We spoke to Kok Peng and his wife Wanqi in this intimate interview of how they are coping…

00:50 – What was life like before ALS?
01:43 – How did you find out about your condition?
02:37 – How did you feel then?
03:36 – How has this changed you?
05:04 – Are you scared?
05:32 – How do you hope to inspire others?